Spoken Words by Sarah Sullivan

Spoken Words by Sarah Sullivan

Thursday (April 26th, 2018) I had the privilege of sharing some important words with a local event, GCL (Gulf Coast Leisure) APNE (Art & Poetry Networking Event), in cooperation with MAC (My Autism Connection). It was an honor to be able to speak for a room full of people, and extremely terrifying! But I did it, and I had a lot of great feedback from listeners. The words I shared were a combination of poetry and just speaking. It wasn’t quite spoken word poetry, so I just called it “speech flow”. I had my tablet with everything I wanted to say, and I felt a huge sense of accomplishment afterwards. I was suggested to open a YouTube channel and present (perform?) it there, but we’ll see. I’m not sure if I’m ready for that. A dear friend of mine suggested a podcast, but I don’t know what other materials I would have in a podcast to keep it going. I had numerous attendees ask for me to post my words on my blog, so here it is:

“What do you think when you hear ‘Autism’? Do movie scenes flicker in your mind, or do you think of scrolling numbers? A little child, a boy? The idea of suffering from some unseen ‘disease’, maybe with a physical disability or speech impediment? If that’s the only thing you think of when you think ‘Autism’, it is time to smash the stereotype.
Math is far from my strong point. I’m very emotionally expressive, yet wrapped up in my own little world. I’m introverted but friendly, and I’m a very overloadable empathetic without being able to be sympathetic. I’m well-spoken, and an adult of 29 years old. I’m married and have a four-year college degree. And I am Autistic.
Now it’s not all about how ‘normal’ I look, and as we all know, ‘normal’ is a setting on the dryer. I have my meltdowns, shutdowns, and my non-verbal moments, my misunderstandings, odd facial expressions when I’m not keeping a list of what expressions I’ve made during the conversation. I have an unofficial master’s degree in the mass-production of social faux-pas. I can fake eye contact like a professional because of years of Southern family training, flying right under the radar enough to be weird without an explanation.
I’m caught in a weird in-between, walking with one foot in the realm of Neurotypicals by upbringing, and one foot on the planet of the Autistics by nature, never knowing quite where I go. But do I really need to decide? Couldn’t the world just be a little more… inclusive?
I picture myself as a translator between my fellow Aspies and my Neurotypical surroundings, dancing between two languages – one that feels foreign to my neurons but has become habit, and one that feels like home to my grey matter but the road there is blocked by societal convention. 
When you’re  what ‘professionals’ call ‘low functioning’, your skills are ignored, forced to watch Barney reruns til you lose your mind, trapped by the able-bodied. When you’re what ‘professionals’ call ‘high functioning’, your deficits are ignored, you’re pushed til you shatter, because what you’re feeling inside doesn’t actually matter.
There’s a lot more to my story, but I don’t have that enough time to regale you with my tales of non-adventure. The moral of this personal story is to pave the way for inclusion – you can’t judge a person’s difficulties by appearance, and you should always assume competence of those who seem to have more difficulties – allow space for everyone to be involved no matter their label or lack thereof. That’s what true inclusion is.”
I hope you enjoyed the read – there’s definitely a rhythm that doesn’t convey very well over reading the piece. When listening, you can hear it. Maybe someday I will record it for everyone, if enough were interested.

On the Potential of Conventions by Matthew James

Recently I attended Florida Supercon, an annual gathering in Ft. Lauderdale of workers in the media and all those who enthuse about it. From local artists to comics industry veterans. From WWE superstars to film and T.V. stars and everyone in between.

   I was right there as the doors opened, and the Broward County Convention Center floor was flooded with people. It’s a surreal experience, being surrounded by people as hopelessly geeky as you, all there for the same reason as you: To geek out.

I, however, had an additional goal. I won’t deny, there may have been a little excitement getting to meet voice actress Anjali Bhimani, who signed a poster for the My Autism Connection. No, I was on a mission, a scouting mission to be specific.

   Interest in autistic characters is growing in the media. Twenty years ago the only prominent piece of media to feature an autistic character was Rainman, and since then autistic characters began showing up irregularly as supporting roles across all media. Eventually, in 2017 we got two television shows with autistic characters in the protagonist role; ABC’s The Good Doctor, an adaptation of a korean medical drama; and the Netflix original series Atypical.

However, calling any of these series good depictions would be, in my own opinion; a stretch. It’s not like the problems in these depictions are new either, the inaccurate stereotypes are the same ones Rainman created. In addition, when we’re not made the butt of the joke we exist to be warm-hearted stories to make neurotypical people feel good about themselves.

   The reason this keeps happening is almost too obvious to say. In a sentence; autistic people don’t work in the entertainment industry, or more accurately they don’t have much say in the decision making process. The number of times an autistic character makes it to screen/air without any kind of consultation from actual autistic people is… disappointing.

   That’s the main reason is that I have been laying down ideas to have M.A.C. attend conventions similar to the one I visited in July. We will set up a booth on the convention floor and run it on our own, interacting with anyone who happens by, be them convention goers or people in the industry. For those who’d be comfortable doing so, we could take our discussions to the stage through panels, Q&As, presentations, speeches; the possibilities for what we can do is endless so long as we get our foot in, stake our claim, and show, just by existing, just how diverse and capable autistic people are.

  How much of a difference could we possibly make on our own? I find that as long as you keep trying, keep pushing and continually show people a new perspective, your effort will always make positive gains. You’d be surprised as to who remembers you.

   In July of 2017 I attended Florida Supercon for the first time and I was on a mission. A much more personal mission than the one I’d find myself on a year later. Making an appearance at the convention that year was Lindsey Jones, a voice actress for my favorite show RWBY. Jones plays the series main protagonist Ruby Rose, a character who I consider my favorite depiction of an autistic person even though she’s not explicitly stated to be autistic in the show (the number of times characters who were never meant to be autistic end up being better depictions than confirmed autistic characters is really high). I made that trip to Supercon that year specifically to tell her how much the character meant to me, especially in the context of battling reductive stereotypes. She welcomed my interpretation, and in general was very kind and understanding. When I saw that Jones would be attending the convention again on my latest visit, I knew a follow up discussion of some kind would be in order and I spent a good portion of my prep for the trip preparing an elevator pitch to get her up to speed on who I was, only to find out I didn’t need to because she recognized me.

   The world is warming up. It’s time to get out in front and bring the narrative around autistic people into the hands of autistic people. And I know for a fact that there’s no better group to do this than My Autism Connection.

Inspiring Independence Bracelet

We are striving to inspire and promote independence, productivity, and employment to each and every individual in our MAC group.  We hope through collaboration with federal, state, and local agencies we will broaden awareness nationwide. $1 from each beautiful, vibrant bracelet you purchase will be donated back to My Autism Connection, Inc.

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